It’s 3am – and the banging has been going on for about 10 minutes now. My heart is racing – and I feel an overwhelming sense of sadness and dread. Is this the 5th night in a row or is … Continue reading
Thank you so much for all the love and support from my previous post – Autism Awareness for the yogi !
I mentioned the group – TACA (Talk About Curing Autism) – in my blog – as a source of help and support to my child and my family.
TACA is run by donations of family and friends of those children living with autism, and provides resources, support group meetings, family picnics, holiday parties & seminars from leading doctors, therapists & child advocates.
TACA gives families the tools they need to navigate through this very challenging diagnosis – and I have made lifelong friends in TACA.
If you are unable to attend, but would still like to help support the efforts of TACA – please click HERE!
April is Autism Awareness month – and we truly appreciate your help and support!
Here is a short video I made about our family, autism – and the help that TACA has given us. Please take a moment to watch if you can!
First of all…..What is Dharma?
Short description – When you live your true purpose and give your gifts fully, you are fully alive and living your fullest potential – your Dharma. Some people might say it is your God given purpose.
How many of us can truly say we are living our Dharma?
First of all – let me say that I am not a certified spiritual guru – a perfect human being – or anyone else qualified to tell anyone how to live their life.
I am just a mom – who loves doing yoga – teaching yoga – and also happens to have a 5 year old little girl with autism. Hopefully I can weave all these pieces together to bring relevance back to my topic.
Let me back up to 4 years ago yesterday….April 16 – 2009. This date is really imprinted on my mind…..and probably always will be.
My 15 month old baby had stopped talking & communicating 2 months ago – and seemed more and more disconnected from all of us. She had developed completely typically – hit all developmental milestones – and then started going in reverse at 13 months. I was in denial – because it just seemed like a bad dream that I might wake up from one day.
On that chilly day in April – we made our first visit to a developmental pediatrician. I let my husband do the talking – because I was incapable of being honest with myself – let alone any professionals who might slap a label on my child.
So my husband talked – the doctor observed her – took tons of notes – and I sat there drinking coffee and nursing a terrible hangover. (Wine was my “medicine” at that time for disconnecting from the situation.)
We left with a diagnosis of PDD.NOS (she was too young for the autism diagnosis at the time – but did get it the following year) – apraxia, sensory processing disorder – and were told that she would most certainly have life long difficulties and limitations.
Now I will stop right here and say – if you are looking for the “feel good” story of the year – where the child recovers completely and is now in mainstream school….this might be the wrong blog for you to read. It is still a good story – just not the one where the kid plays piano in a concert hall or sings on a cute you-tube video or something like that.
Every year presents itself with new challenges and heartaches. She still struggles to talk – and when she does – only 15% is understandable…..even by me. She doesn’t notice people unless she knows them – and she has had trouble sleeping for the last 4 years. Some nights we only get 2 hours of sleep – if that.
We spend most of our money on therapies – food (a very clean diet) – and diapers. Yes – a 5 year old who isn’t potty trained. Not for lack of trying!
We spent the first 2 years after her diagnosis thinking that we could “cure” her. Exerting our will on her – flying across the country to see different doctors – spending thousands upon thousands of dollars for medical interventions and therapies.
When we had little or no results – we just blamed ourselves – each other and God. Speaking solely for myself – I was (and sometimes catch myself going there) – bitter – angry, cynical and jealous of people who had “typical” kids. Even jealous of people who had kids with Aspergers. Such a terrible way to live your life – and I do not recommend it.
At some point during all this insanity – I found yoga. I started going every single day….and I started to have “releases” (still do some days!) – …I would break out in tears during savasana. During the silence – during the moments in between the moments – I would start to feel.
As days of yoga turned into months and years – the tears became joyful. I became more thankful – less bitter – less angry. I started to heal a little bit. I stopped comparing myself to others as much (still working on this one daily) – and most of all – I stopped comparing my child to others (definitely still working on this!).
I fell in love with this new way of looking at myself, my child – and the world. The yoga was helping me! How oh how could I get more!? (Me – always more is better! 😉
One day I decided I wanted to teach, and after much thought and support from my husband – I went to training.
Through training I went through a lot – emotionally & physically. I had to keep letting old ideas die – and be OK with it. I had to find acceptance for my body – for my life – for my child. Sometimes I would go through a weekend of physically exhausting training on 2 hours of sleep. Then there was the fact that I was terrified that no one would want me as a teacher for 10,000 reasons in my own head.
And then one day it happened. I was in front of a class teaching people. TERRIFIED. I stumbled a little on my words – kept going as smoothly as I could – while inside I was shaking and trying to evoke to Gods to carry me through the class.
And then the class was over. I got smiles – thank you’s – hugs……”when do you teach again? where else do you teach?” They must have been talking to the wrong person….? But they were talking to me. The quirky gal walking around – speaking softly and asking people to relax and feel their breath moving them.
I was on a CLOUD! Was this my Dharma? I didn’t have any idea – but it surely felt like it. A new level of transformation and healing has been happening in my life. My daughter – by living her Dharma – and just being herself isn’t “holding me back” anymore. Woah – wait a second – did I just realize that it wasn’t all about me?
Truthfully – my daughter is the light of my life and I wouldn’t change a hair on her head – even if I could. (Let me also give props to prayer & meditation on that last comment)
This autism journey is truly the hardest thing I have ever had to deal with in my life. But it has gotten better – some days it is beautiful – some magnificent – and some heartbreaking. The truth is that I can actually see the beauty now – and not only the pain.
Stepping outside of myself and sharing something I love (yoga) – helps clear things up even more. Is that my Dharma? I don’t know. But it sure feels right from the bottom of my heart – so I will keep doing it today.